|Disabled Village Children - A Guide for Community Health Workers, Rehabilitation Workers, and Families (Hesperian Foundation, 1999, 676 p.)|
This book has been a cooperative effort. Many persons have contributed in different ways. Some have helped to write or rewrite different sections; some have criticized early drafts; some have used it in their programs and sent us feedback; some have sent original ideas or technologies that we have tested and then included. In all, persons or programs from 27 countries on 6 continents (North and South America, Africa, Asia, Europe, Australia) have contributed.
The entire book has been carefully reviewed by specialists in related fields: physical therapists (PTs), occupational therapists (OTs), orthotists, prosthetists, wheelchair designers, rehabilitation engineers, and leaders from among the disabled. We cannot include the names of all those who have helped in so many ways, but the help of the following has been outstanding:
Sophie Levitt, PT; Ann Hallum, PT; Terry Nordstrom, PT; Anne Affleck, OT; Mike Miles, rehab planner and critic; Christine Miles, special educator; Farhat Rashid, PT; Bruce Curtis, peer disabled group counselor; Ralf Hotchkiss, wheelchair rider/engineer; Alice Hadley, PT; Jan Postma, PT; Jean-Baptiste Richardier, prosthetist, Claude Simonnot, MD/prosthetist; Wayne Hampton, MD/prosthetist; Jim Breakey, prosthetist; Wally Motlock, orthotist; Valery Taylor, PT; Dr. P. K. Sethi, orthopedic surgeon/prosthetist; Pam Zinkin, pediatrician/CBR expert; Paul Silva, wheelchair builder; David Morley, pediatrician; Elía Landeros, PT; Teresa Páez, social worker; Rafiq Jaffer, rehab specialist; Kris Buckner, parent of many adopted disabled children; Barbara Anderson, PT; Don Caston, rehab engineer; Greg Dixon, Director, Partners Appropriate Technology In Health; Susan Hammerman, Director, Rehabilitation International; Carole Coleman, specialist in sign language; Suzanne Reier, recreation therapist; Sarah Grossman, PT; Donald Laub, plastic surgeon; Jean Kohn, MD in rehabilitation; Bob Friedricks, orthotist; Katherine Myers, spinal cord injury nurse; Grace Warren, PT in leprosy; Jean M. Watson, PT in leprosy; David Sanders, pediatrician; Jane Neville, leprosy expert; Stanley Browne, MD, leprosy; Alexandra Enders, OT; John McGill, prosthetist; Victoria Sheffield, Rita Leavell, MD, Jeff Watson, J. Kirk Horton, Lawrence Campbell, Helen Keller International; Owen Wrigley, IHAP; Roswitha and Kenneth Klee, Winfried Lichtemberger, Jeanne R. Kenmore, Christoffel Blindenmission; Judy Deutsch, PT; Jane Thiboutot, PT; R.L. Huckstep, MD; Linda Goode, PT; Susan Johnson, PT; David Hall, child health consultant; Ann Goerdt, PT for WHO; Mira Shiva, MD; Nigel Shapcott, seating specialist; Ann Yeadon, educator; Charles Reilly, sign language consultant; Eli Savanack, Gallaudet College; John Gray, MD; Molly Thorburn, MD; Lonny Shavelson, MD; Margaret Mackenzie, medical anthropologist; Rainer Arnhold, MD, Gulbadan Habibi, Caroline Arnold, Philip Kgosana, Garren Lumpkin, UNICEF.
Above all, we would like to thank the team of disabled village rehabilitation workers in Project PROJIMO, Ajoya, Sinaloa, Mexico, along with the hundreds of disabled children and their families. Their involvement and interaction in exploring, testing, inventing, and discovering simplified alternatives has led to the formation of this book. Key among the PROJIMO team are: Marcelo Acevedo, Miguel Alvarez, Adelina Bastidas, Roberto Fajardo, Teresa Gárate, Bruce Hobson, Concepción Lara, Inés León, Ramon León, Polo Leyva, Armando Nevárez, Maria Picos, Adelina Pliego, Elijio Reyes, Cecilia Rodríguez, Josefa Rodríguez, Concepción Rubio, Moisés Salas, Rosa Salcido, Asunción Soto, Javier Valverde, Florentino Velázquez, Efrain Zamora, Miguel Zamora.
For this book we have borrowed information, ideas, illustrations, methods, and designs from many sources, published and unpublished. Often credit has been given, but not always. If you notice we have borrowed from your material and neglected to give you credit, please accept our unspoken thanks and apologies.
For their excellent and dedicated work in preparing the manuscript for publication, special thanks go to: Jane Maxwell, editing, page design, and art production; Irene Yen, editing and paste-up; Kathy Alberts, Elizabeth de Avila, Martín Bustos, Mary Klein, Carlos Romero and Marjorie Wang, paste-up; Martín Bustos and Anna Muñoz-Briggs, Spanish translation; Myra Polinger, typing; Lynn Gordon, Bill Bower, Phil Pasmanick and Dan Perlman, general review; Alison Davis, reference section research; Elizabeth de Avila, Don Baker, Agnes Batteiger, Jane Bavelas, Leda Bosworth, Renée Burgard, Michael Lang, Betty Page, Pearl Snyder, Tinker Spar, Paula Tanous and Roger Wilson, proofreading; Lino Montebon, Joan Thompson and David Werner, drawings; Richard Parker, John Fago, Carolyn Watson, Tom Wells and David Werner, photography; Dyanne Ladine, art production; Martín Bustos and Richard Parker, photo production; Hal Lockwood and Helen Epperson of Bookman Productions, Tim Anderson and Linda Inman of Reprographex, typesetting and layout; and Trude Bock for giving so wholeheartedly of herself and her home for the preparation of this book.
We want to give an extra word of thanks to Carol Thuman for coordination, typing, and correspondence and Janet Elliott for graphics, artwork, and paste-up, and to both for sharing the responsibility for the preparation and quality of this book.
The main costs of preparing this book were met by grants from the Public Welfare Foundation, whose continued friendship and support of the Hesperian Foundations new publications is deeply appreciated. Additional funding was generously provided by the Gary Wang Memorial Fund, UNICEF, OXFAM UK, the Swedish International Development Agency and MISEREOR. We would also like to thank the Thrasher Research Fund and Mulago Foundation for helping meet the costs of Project PROJIMO, from which this book evolved.
For this third printing, we would like to thank Manisha Aryal for coordination; Martin Bustos for meticulous research; Susan McCallister for copy editing and careful proofreading; and Elena Metcalf for page layout and proofreading.
Finally, we would like to thank David Werner for his careful and hard work in preparing this book. His vision and advocacy for disabled people around the world is reflected throughout the book.
The Hesperian Foundation