Practices in relation to the PWDs
Past and present practices in relation to the people with
disabilities fall into six distinct categories:
Isolation: The worst practice is isolation. It is a form of
rejection. It is the denial of the very humanity of the person, especially so of
people with disabilities arising from illnesses such as leprosy, epilepsy and
mental impairment.
Get it from the horse's mouth
Is it true that you want to know? Do you want to know about
disability? Do you want to know about disabled people? What do you really
want to know? Why not get it from the horse's mouth?
I am physically disabled I need love, I am blind I need
shelter, I am mentally disabled I need patience, I am deaf I need
attention, Now you are getting it from the horse's mouth
It is not enough I have more. I need education for my
future. I need to be employed for my future. I need to be encouraged by
you. Now you are getting it from the horse's mouth
No, I am not through I need to be next to you not far.
Girlie Hlanze, Swaziland
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Practices in Relation to PWDs
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Isolation
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Overprotection
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Institutional Welfare
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Educational Approach
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Medical Approach
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CBR
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Overprotection: This, too, is a form of denial of the
personality and capability of the person with disability. You can suffocate a
person with excess love and sympathy. The effort to secure independence from
family is sometimes almost like fighting a liberation struggle.
Institutional welfare: The more liberal forms of isolation
take the form of special treatment of the PWDs in rehabilitation centres. These
include both state institutions as well as those set up by (NGOs) especially the
churches. This involves considering PWDs as objects of charity an welfare.
Although justified in special situations, its more generalised application to
all the disabled persons constitutes a gross insensitivity to those amongst them
who, with support, can look after themselves.
Educational approach: Traditionally, governments and (NGOs)
have tended to reinforce the isolation of children with disabilities by
establishing special and separate educational institutions, such as schools for
the deaf and the blind. Unless absolutely necessary, e.g., for purposes of
learning braille, the aim should be integration within the mainstream.
The medical or professional approach: Once again a case can
be made for certain kinds of disabilities that can be helped or alleviated
through short periods of physiotherapy, psychotherapy or communication therapy.
But a wholesale application of the "medicalist" approach to disability is both
harsh and harmful to the PWDs. It isolates the clinical aspect of disability
from the whole physical, psychic and spiritual being of the PWDs, and must be
avoided at all cost.
Community Based Rehabilitation (CBR): As distinct from the
above practices, CBR encourages communities to accept PWDs as integral members
of society.
This chapter focuses on CBR, not in order to exalt its virtues in
comparison to other approaches but in order to look at it critically in the
light of some practical experiences. The other objective of the chapter is to
examine what facilitative (or enabling) role the community can play in relation
to the disabled people, in the light of our discussion on the "enabling
environment" in the previous
chapter.